invincible summers

in the middle of winter I at last discovered that there was in me an invincible summer. (albert camus)

while i’ve been away May 10, 2009

So much news and so little time to comment but here are a few stories worth reading:

Most NAMI Money is From Psychiatric Drug Industry! BIG surprise (not) but thank you Sen. Grassley for continuing to fight for awareness and human rights while most members of Congress sit back and don’t say a word.

The FDA has approved yet another drug for schizophrenia, Fanapt. Keep your eyes on this one. Soon to be the next Seroquel, Zyprexa, Abilify, etc. When will this madness stop? The FDA continues to disappoint.

Two recent trials show akathisia occurred in 25% of Abilify patients compared to 4% of placebo patients. I’m glad I got off this one quick-even though I still have doctors pushing it. and I am growing increasingly tired by the constant Abilify ads on TV. I’m about to storm Bristol-Myers Squibb’s headquarters. Here’s their advertisement for the drug:

Merck Makes Phony Peer-Review Journal. Well, this one leaves me speechless.

The Scientist has reported that, yes, it’s true, Merck cooked up a phony, but real sounding, peer reviewed journal and published favorably looking data for its products in them. Merck paid Elsevier to publish such a tome, which neither appears in MEDLINE or has a website, according to The Scientist.

What’s wrong with this is so obvious it doesn’t have to be argued for. What’s sad is that I’m sure many a primary care physician was given literature from Merck that said, “As published in Australasian Journal of Bone and Joint Medicine, Fosamax outperforms all other medications….” Said doctor, or even the average researcher wouldn’t know that the journal is bogus. In fact, knowing that the journal is published by Elsevier gives it credibility!

Psych Rights sent letters to several members of Congress:

Massive Medicaid Fraud Exposed: PsychRights Calls on Members of Congress for Assistance
In letters to Senators Charles Grassley and Herb Kohl, and Representatives Henry
Waxman, Bart Stupak, John Dingell & Barney Frank, the Law Project for Psychiatric
Rights (PsychRights®) has exposed massive Medicaid Fraud. While working on
PsychRights v. Alaska, its lawsuit to prohibit the State of Alaska from the largely
ineffective and always harmful psychiatric drugging of children and youth, PsychRights
“discovered that it is illegal for the vast bulk of these prescriptions to be reimbursed by
Medicaid.”

Extrapolating from Alaska Medicaid Claims, PsychRights calculates over $2 Billion in
fraudulent claims are being paid nationally every year for drug treatments Congress has
explicitly prohibited, and it is probably well over $4.5 Billion, based on the total amount
paid by Medicaid. Stating the carnage caused by the practice will be “recognized as the
largest iatrogenic (doctor caused) public health disaster in history,” PsychRights
analogized the situation, “to our current economic debacle caused by unrestrained Wall
Street greed,” but noted, it is much worse, ” because children’s and youth’s future, health,
and even lives, have been sacrificed and continue to be sacrificed on the altar of corporate
profits.”

Also, “because most current child psychiatrists no longer know how to help children and
youth without resort to the drugs” PsychRights suggests “the savings be used to fund
approaches that have been proven to be safe and effective.”

The Law Project for Psychiatric Rights is a public interest law firm devoted to the
defense of people facing the horrors of forced psychiatric drugging and electroshock.
PsychRights is further dedicated to exposing the truth about psychiatric interventions and
the courts being misled into ordering people subjected to these brain and body damaging
drugs against their will. Extensive information about these dangers, and about the tragic
damage caused by electroshock, is available on the PsychRights web site:
http://psychrights.org/.

 

Joe Pantoliano on mental illness stigma April 27, 2009

thanks to Van for posting on this-I’ve been out of the loop and missed it although I am familiar with what Joe has been doing lately.

Joe Pantoliano (The Sopranos, Memento, The Matrix, The Goonies) started an organization called No Kidding, Me Too! He has a documentary coming out with the same title. I want to start off my saying, I commend him for this. Stigma is a real problem in America and throughout the world. We must bring an end to it!

This is Joe’s message at his website:
We are ready for the fight and we ask you to please join us in the revolution and help us educate souls all over the world to “Remove the Stigma!”

Mission
No Kidding, Me Too! is an organization whose purpose is to remove the stigma attached to brain dis-ease through education and the breaking down of societal barriers. Our goal is to empower those with brain dis-ease to admit their illness, seek treatment, and become even greater members of society.

The Goal
Make Brain Dis-ease cool and sexy. We want a normal conversation in America to be:

“I have bipolar disorder/schizophrenia/insert dis-ease”

“No Kidding, Me Too!”

Who Has The Stigma:
Those suffering from brain dis-eases including anxiety disorder, post-traumatic stress disorder (PTSD), obsessive-compulsive disorder (OCD), panic disorder, social anxiety disorder, specific phobias, depression, bipolar disorder, schizophrenia, anorexia nervosa, bulimia nervosa, binge eating, pyromania, kleptomania, compulsive gambling, addictions, paranoia, multiple personality disorder, gender identity disorder, Down’s syndrome, psychosomatic disorder, tic disorders, and others.

How Will NKMT Accomplish This?
h Create strategic partnerships with members of industry, academia, organizations and government to ensure a broad-based spectrum of support and input.
h Organize the creative talents of our industry professionals to generate messages for various media and use our celebrity status to ensure these messages are heard. The messages will be of empowerment and acceptance and can include topics as basic as giving job opportunities to those with a brain dis-ease.
h Coordinate, participate in and generate interest for national and regional educational events consistent with our goal.

He has an impressive list of Advisory Board members, some of whom I greatly admire in the industry Joey and I share: Robert Downey, Jr, Ed Begley, Jr, Jeff Bridges, Edie Falco, Marcia Gay Harden, Ang Lee, Robin Williams and many more.

At his website there are photos of Joey from the screening of the teaser at the Democratic National Convention with people like Tony Goldwyn, Dana Delaney, Bobby Kennedy, Melissa Etheridge and Tom Fontana.

Here’s the teaser to his documentary:

Under the resources section at his website-the very first resource listed is NAMI. ahem. I wonder if Joe has researched Big Pharma’s influence at NAMI? Is he aware that Sen. Grassley is investigating NAMI’s funding? I am a registered Democrat and I’m becoming increasingly frustrated with this party, a party who is ignoring the corruption of Big Pharma and anyone linked to Big Pharma mainly because of their involvement with them. They are looking out for themselves and those that financially support them instead of the PEOPLE. Senator Grassley is all alone and that is sad.

At Joe’s website he links to several articles, letters, humorous videos and some of this favorite quotes, here’s a sampling:

To Fight Stigmas, Start With Treatment

Call for New Home to Address Health Disparities for Mentally Ill

FDA Approves Depressant Drug For The Annoyingly Cheerful

some of Joey’s favorite quotes

The teaser for his documentary opens with the statement:
1 in 4 Americans suffer from mental illness
4 in 5 Americans are affected by it

And then throughout you see more statistics on the screen:

87 million Americans have been diagnosed with some form of mental illness
There are over 350,000 diagnosed cases of PTSD resulting from the Iraq war
18 of our American heroes are committing suicide every day

And statements like these:
There is a fine line between madness & creativity
Mental illness is the only DIS-EASE which you can be diagnosed with, and get yelled at for having

Joe went public with his illness after he was hired to do a film. (FYI: one of the first things required for actors and directors before they start filming is to see a doctor and production schedules a physical for insurance purposes) He had done this over 70 times but in this case he told the doctor the two medications he was currently taking, one for depression and one for heart disease. His lawyers were then informed that the production company/studio could not insure Joe because he was taking an antidepressant. They were told Joe could sign a waiver basically saying if he had a ‘breakdown’ he would be financially responsible for the loss of work or a shutdown. Joe’s real problem and awakening was simple: they were willing to cover his heart but not his brain. That is stigma. We all know it and it’s something I’ve been fighting and living with for countless years. It’s heartbreaking.

However, in a separate (lengthy) taped discussion with Joe he discusses a number of topics, mostly stigma, his films, politics & mental illness. He also talks about the fact the he quit drinking and has started practicing yoga, he exercises, etc. He believes in the theory that mental illness is genetic. I believe he mentioned his mother was diagnosed bipolar. Now, I haven’t seen his documentary but when his teaser states 87 million Americans suffer from a mental illness-I doubt (and I hope I’m incorrect) that he mentions why we have this false statistic. This number has increased drastically simply due to Big Pharma’s influence and a bunch of doctors started diagnosing people for a variety of reasons: more money in their pockets, get the patient in and out as quickly as possible, falsified data and studies…the list goes on and on. Instead of dealing with the true issue at hand, whether it be trauma or dysfunction, it seems Joe has partially bought into the quick fix system. And he’s using his celebrity status with people in the government in hopes that his message will be heard. That would be all fine and good except there are many flaws in his message. I agree with ending stigma but ‘his message’ goes much, much deeper than that.

In chapter 15 of the discussion linked above someone asked him if he’s tried alternative treatments like acupuncture and he states that he does practice yoga and meditation, he partakes in talk therapy, 12 step groups, etc. He seems to be all over the map and that is fine. It is his path. But it will truly disturb me if he does not mention Big Pharma’s influence within our modern psychiatric world (doctors, NAMI, etc) in his documentary, No Kidding, Me Too!

 

Senator Grassley is not backing down April 6, 2009

Filed under: corruption,news — clementine @ 3:29 pm
Tags: , , , ,

Thanks to Gianna and Duane for this amazing news. According to this report at Bloomberg, Senator Chuck Grassley is now investigating NAMI. Excellent! I would write more but I need a nap and I need to let this sink in:

April 6 (Bloomberg) — U.S. Senator Charles Grassley expanded his investigation into drug company influence on the practice of medicine by asking a nonprofit mental-health- advocacy group about its funding.

In a letter sent today to the National Alliance for Mental Illness, based in Arlington, Virginia, Grassley asked the nonprofit group to disclose any financial backing from drug companies or from foundations created by the industry.

The Iowa Republican, in a series of hearings and investigations, has focused on financial ties between the drug industry, doctors and academic institutions. His efforts have led New York-based Pfizer Inc. to begin disclosing consulting payments to U.S. doctors, and Harvard Medical School in Boston to reexamine its conflict-of-interest policies. Now Grassley is expanding his inquiries to nonprofit groups.

“I have come to understand that money from the pharmaceutical industry shapes the practices of nonprofit organizations which purport to be independent in their viewpoints and actions,” Grassley wrote in his letter.

Officials at the National Alliance for Mental Illness didn’t return calls for comment.

of course they didn’t

The group identifies itself as the largest grassroots organization in the U.S. for people with mental illness and their families. The group came under scrutiny in 1999, when the magazine Mother Jones reported that 18 drug companies gave the group $11.7 million from 1996 to mid-1999. The article reported that at one point an executive of Indianapolis-based Eli Lilly & Co. worked out of the nonprofit group’s headquarters.

A 2007 annual report showed that the group’s corporate partners at that time included Madison, New Jersey-based Wyeth; London-based GlaxoSmithKline Plc; Eli Lilly, which makes Prozac; and the Washington-based trade group Pharmaceutical Research and Manufacturers of America.

Financial Report

A separate financial report shows the National Alliance for Mental Illness brought in $10.5 million in contributions in the year that ended June 30, 2007. The donors aren’t broken out.

Vera Sharav, president of the Alliance for Human Research Protection, a New York-based nonprofit that promotes ethical research, said the National Alliance for Mental Illness may have drawn Grassley’s attention because it lobbies Congress for mental-health funding.

“Academics and physicians give an appearance of authority,” Sharav said by telephone. “Industry gives them the money. Grassley has been going after each group systematically, and the dots are being connected.”

click the Bloomberg link above to continue reading….